Rally for Reed
Life as Dad of a Kid with Sanfilippo Syndrome
Skip to content
Home
Our Story
About Reed’s Disease
Sanfillipo Foundation for Children
Monthly Archives:
January 2012
Telling our story
Posted on
January 10, 2012
by
zeighami
Posted in
Uncategorized
|
Leave a comment
Help Speed Treatment for Rare Diseases
Write
your congressman to ask them to support the
ULTRA
act which will enable access to accelerated approval for rare disease treatments.
Follow SF4K on Twitter
Follow this blog
Seach My Blog
Search for:
Archives
February 2012
January 2012
December 2011
November 2011
October 2011
September 2011
August 2011
July 2011
June 2011
May 2011
April 2011
March 2011
February 2011
Latest Posts
The Grassroots are United Behind ULTRA
Telling our story
Unlocking Lifesaving Treatment Act of 2012
If by Rudyard Kipling
Sanfilippo Congress: Geneva 2011(Updated)
Share This Page
Tweet
Blogroll
Case's Blog
January 2012
M
T
W
T
F
S
S
« Dec
Feb »
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
31
Spamfilter
955
spam comments
blocked by
Akismet
FeedBurner RSS