Monthly Archives: November 2011

Did you know: More people, collectively, suffer from a rare disease than HIV + AIDs combined Accelerated Approval has only been used once for a rare disease treatment (since 1992) Accelerated Approval has been used dozens of times for HIV … Continue reading →

I believe that the rare disease community is on the verge of a revolutionary shift.  What once was a weakness has become a strength.  Our community is spread far and wide by its very nature.  This broad distribution of people … Continue reading →