Monthly Archives: September 2011

Perception vs. Reality and How They Impact Rare Disease

Posted on September 9, 2011 by zeighami

I wanted to take just a short minute so crystallize a thought.  As I read stories on the FDA and drug approval, I am struck by the way consumers/patient groups are characterized.  There is an impression that is given that … Continue reading →

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A Rare Disease Patient Perspective

Posted on September 7, 2011 by zeighami

I would like to use this blog post to explain why the rare disease community is different, and why it deserves a different approach to the approval of treatment. This weekend I started reading Inside the FDA: the politics behind … Continue reading →

Posted in FDA Reform, Uncategorized | 3 Comments