Help Speed Treatment for Rare Diseases
Follow SF4K on Twitter
Seach My Blog
Share This Page
Monthly Archives: May 2011
This week, we made the first of three trips to Minneapolis, Minnesota for the MPS IIIA Natural History Study. Shire is sponsoring the study to get baseline data for a potential new treatment for Sanfilippo.
What: Event to raise money for a cure for Sanfilippo Syndrome. When: Saturday, May 21st noon-3:00 PM Where: Park Behind Elliott Elementary School 3721 Hudson Crossing McKinney, TX Questions? Lost? Call my cell at 972-984-0412