Monthly Archives: May 2011

The Waiting Game

Posted on May 31, 2011 by zeighami
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Our First Visit to the Natural History Study

Posted on May 12, 2011 by zeighami

This week, we made the first of three trips to Minneapolis, Minnesota for the MPS IIIA Natural History Study.  Shire is sponsoring the study to get baseline data for a potential new treatment for Sanfilippo.

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Bar-B-Cure for Sanfilippo Syndrome

Posted on May 11, 2011 by zeighami

What: Event to raise money for a cure for  Sanfilippo Syndrome. When: Saturday, May 21st noon-3:00 PM Where: Park Behind Elliott Elementary School 3721 Hudson Crossing McKinney, TX Questions? Lost?  Call my cell at 972-984-0412

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