Monthly Archives: February 2011

The Inequity of Rare Disease Knows No Boundary

Posted on February 27, 2011 by zeighami

The treatment of people with rare diseases is not just a scientific problem.  In many ways, it is more of a social and political issue.  If we can solve the political problems, the science will follow.  As a world we … Continue reading →

Posted in Uncategorized | Leave a comment

The Sad Truth About the US Rare Disease Drug Approval Process

Posted on February 22, 2011 by zeighami

 Before I get into the meat of my blog post, I would like to start by saying that I am in no position to endorse any treatment.  I put more faith in the feedback of medical experts, patients and parents … Continue reading →

Posted in FDA Reform | 2 Comments

Problems and the Law of Expandability

Posted on February 13, 2011 by zeighami

Problems will expand to fill all the space we give them.  No matter how bad things get, we have to contain them. It can be easy to look at the challenges we face and feel sorry for ourselves.  We all … Continue reading →

Posted in hope, worry | 3 Comments